That made the decision not to do it easy. Your personal feelings are just as important as the medical facts. Think about what matters most to you in this decision, and show how you feel about the following statements. I think putting the cord blood in a private bank would be worth the cost. I have a young family member who will probably need a stem cell transplant in the future. No one in my family has an illness that would need stem cells for treatment. I will donate the cord blood to a public cord bank if I can, because I'll feel better if the stem cells don't go to waste.
I like the idea of banking the cord blood for the future, "just in case. I'm not worried about the really small chance that my child might need his or her own stem cells. We plan to have more children, and leukemia, Hodgkin's, or sickle cell disease runs in our family. Now that you've thought about the facts and your feelings, you may have a general idea of where you stand on this decision. Show which way you are leaning right now. How sure do you feel right now about your decision?
Use the following space to list questions, concerns, and next steps. Here's a record of your answers. You can use it to talk with your doctor or loved ones about your decision.
I should bank my baby's cord blood in case my baby gets an illness that can be treated with stem cells. I have to arrange ahead of the birth to have my baby's umbilical cord blood banked or donated. I may be able to donate my baby's cord blood to a public blood bank for use in research or to help other children. Are you clear about which benefits and side effects matter most to you? Do you have enough support and advice from others to make a choice? Author: Healthwise Staff. This information does not replace the advice of a doctor.
Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use and Privacy Policy. Learn how we develop our content. To learn more about Healthwise, visit Healthwise. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated. Get the facts. Your options Have your baby's cord blood collected and sent to a private cord blood bank or a public cord blood bank.
Do not bank or donate your baby's cord blood. Key points to remember Doctors do not recommend that you bank cord blood on the slight chance that your baby will need stem cells someday. If your baby were to need stem cells, he or she would probably need stem cells from someone else rather than his or her own stem cells.
Although privately banked cord blood is not likely to help your baby, it may help a sibling who has an illness that could be treated with a stem cell transplant. These include leukemia , sickle cell disease , Hodgkin's lymphoma, and thalassemia. Doctors recommend that you bank your baby's cord blood only if a family member already has one of these illnesses. You might consider donating the cord blood to a public bank instead. You probably won't be able to use the blood, but it could be used for research or for another child.
Private cord blood banking is expensive. If you want to save the cord blood, you must arrange for it ahead of time. It is not a decision you can make at the last minute. Collecting the cord blood does not cause pain. What is umbilical cord blood? What is cord blood banking? How much does it cost? Some private blood banks will waive their fees for families who need the stem cells right away.
Public donation After cord blood is collected it can be banked, frozen at very low temperatures and stored, for future use see figure at right.
In , the American Academy of Pediatrics reported that there are about , units of cord blood stored at public banks, and over 5 million units banked for private use worldwide. Even though there are over 6 times as many units stored in private banks, public banks have released about 30 times more units for therapeutic use. Families storing cord blood should seek facilities that have been accredited by reputable organizations. Foundation for the Accreditation of Cellular Therapies FACT sets international standards and accredits cord blood banks and cell transplantation programs.
The organization AABB accredits facilities that provide banking and transfusion services as well as blood centers. Since patients need stem cells from a donor who is an immunological match, it is crucial to increase the genetic diversity of cord blood available in public banks.
It is therefore important that people from diverse genetic and ethnic backgrounds donate cord blood to public banks. When a family donates cord blood to a public bank, it is done altruistically for the benefit of anonymous recipients or stem cell research. The family gives up rights to the blood, and the bank is responsible for collecting, processing, testing, and storing it. In , there were more than public banks in 36 countries.
Additional information can also be found on the EuroStemCell website. Private Banking Private banks generally charge an initial fee for collecting, testing, and registering the blood, as well as yearly storage fees. In return, only the family has access to the stored stem cell sample. According to an article published in the journal PLOS Medicine , the probability of needing to transplant your own blood stem cells is less than 1 in 20, Should a patient require a stem cell transplant that uses their own blood stem cells or the stem cells of a sibling, these cells can usually be obtained at the time necessary by bone marrow or peripheral blood stem cell collection.
Additionally, if an individual has an inherited genetic blood or immune disorder that requires a stem cell transplant, the blood stem cells harvested from the cord blood of that individual will have the same genetic mutation s , and therefore cannot be used to cure the patient without additional gene therapy.
Studies are ongoing to try to genetically correct mutated stem cells, however, more research is needed. The American Academy of Pediatrics encourages private banking if the donor is a full match to a relative who has a disease that is treatable by stem cell transplantation.
Several cord blood banks participate in this program. This means that all public cord blood banks follow the same standards and safety measures for collecting and storing cord blood. This law helps public banks store more cord blood and match more patients. Store in a private cord blood bank. This may be a good option for you if you have a child or family with a health condition that may need to be treated with a stem cell transplant. The chances that your baby or a family member may need to use your stored cord blood are very low — about 1 in 2, What are the benefits of stem cells from cord blood?
These include: Safe, easy collection. Collecting stem cells from cord blood has no risks for you or your baby. But to donate bone marrow, you have to have a procedure that requires anesthesia. Anesthesia is medicine that lessens or prevents pain.
If you donate stem cells from blood, you have to have several shots. This can cause bone pain, muscle aches or other side effects. More matches. Stem cell transplants from bone marrow or blood need to have an almost perfect match of certain proteins in the donor and the person who gets the stem cells.
It can be hard to find the right match. This means that more people may be able to find a match using cord blood. Ready to use. With bone marrow, it can take time to find a match and collect a sample. Better chance of transplant success. People who have stem cell transplants from cord blood may be less likely to have problems or infections after the transplant than those who have bone marrow transplants.
Some studies suggest that cord blood stem cells may create more new blood cells than bone marrow. How is cord blood collected? What types of health conditions can be treated with stem cells? Following the birth of your baby, your placenta is normally thrown away along with the cord blood that is in it. Thanks to scientific research in this field, we are constantly discovering more and more diseases and conditions that can be successfully treated with stem cells found within cord blood.
For the transplant to be a success, stem cells taken from the cord blood must match the patient's tissue type as closely as possible. So, for patients to have the best chance of a 'match' we need to store as many cord blood donations as possible, and we can't do this without you.
If your cord blood is not collected by our trained staff, and you have not made alternative arrangements for your cord to be collected privately, your placenta containing your cord blood will be thrown away, according to routine hospital practice.
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